Resources

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Cure Spinal Muscular Atrophy

Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease. Each state has its own parent support group for patients and families. 

Duchenne Connect

The website includes information on the causes of Duchenne and Becker muscular dystrophy, symptoms, disease progression, and information about clinical trials. 

Muscular Dystrophy Association

The website provides information about MDA clinics, support for patient and families, education resources and transition services to assist youth with disabilities as they prepare for adulthood.

Parent Project Muscular Dystrophy

PPMD provides information about Duchenne muscular dystrophy, the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. 

United Ability

United Ability provides innovative services connecting people with disabilities to their communities through Hand In Hand Early Intervention, Hand In Hand Early Learning Program, the LINC Point Adult Day Program, the Ability Clinic and Outpatient Therapy Program, Supported Employment, Gone for Good, and Employment Services.