Prinston Amir was born on April 8, 2015. He was so perfect. He had a head full of hair, so beautiful! The first day went by and Prinston didn't have his first bowel movement. I knew right then my son had Hirschsprung disease because it’s a hereditary condition. It affects the large intestine and causes problems with passing stool.This was not my first rodeo. Not only was I diagnosed with this disease as a baby, but also my first son Tristin. I was saddened, but knew I had to deal with things and stay strong for Prinston.
He had two surgeries in Huntsville and I was not satisfied. I wanted a second opinion. On April 29, 2015, he was driven by ambulance to Children’s of Alabama. When we arrived he was admitted on the seventh floor, the step down intensive care unit. After the surgery team saw him they thought it would be best if he was in the NICU with the other babies.
The next day his stomach was red, fire engine red. The doctors decided to do an emergency surgery. After surgery they explained to me that I would need to plan on being in the hospital at least two months. The hospital is like a roller coaster, up and down. One day your patient might be doing great and the next day your patient could be doing or feeling terrible.
Prinston had to have many blood transfusions and different antibiotics to get him well. After all the surgeries he had been through, he now had trouble keeping his milk down. I had no idea he would have to stay five whole months, but I didn't complain and I wouldn't change anything. I can't thank the surgery team and the great nurses from the NICU enough. They did not rush him home, but instead they all got together and came up with a great plan that would work just for Prinston. Thank God it worked.
The day he came home they made sure everything was perfect. He finally got to go home on Sept. 25, 2015. Ever since he has been home he has been doing great. Since I had already been through this with my first son I am a pro at caring for him. In fact, one day I will become an RN and work in a NICU.