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  • Locations and Directions
    • Locations Map
    • Emergency Department
    • Pediatric Practices
  • Programs and Services
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    • Visitation
    • Planning Your Visit
    • Online Pre-Registration
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  1. Home
  2. Programs and Services
  3. Cancer and Blood Disorders
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  5. Pediatric Hematology (Blood Diseases, including Sickle Cell Disease)
  6. Sickle Cell Disease
  7. BABY STEP
  8. HbS/Beta + Thal

Cancer and Blood Disorders

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HbS/Beta + Thal

HbS/Beta + Thal

The table below includes the instructions on: which test to administer, handout to give, and video to watch for each visit . Please click the visit instruction link below for more information on how to follow the steps for each visit.

Visit

Education Test

Education Handouts 

Education Videos 

 1st

Visit instructions

Test & answer key

So you have Sickle Cell Disorder

Infection in Sickle Cell Disease

How to measure a temperature

Parents' Handbook 

Visit #1: basics, infection, & fever 

2nd  

Visit instructions

Test & answer key 

 Scale of severity

Disease specific

Spleen

Anemia

Visit #2: hemoglobin profile, spleen function, & anemia

3rd 

Visit instructions

Test & answer key 

How to dose Tylenol

How to dose Motrin/Ibuprofen 

Visit #3:  severity of pain

 4th

Visit instructions

Test & answer key 

Kidney damage  Visit #4: Kidney damage 

5th  

Visit instructions

Test & answer key 

Gallstones  Visit #5:  Gallstones 

6th 

Visit instructions

Test & answer key 

Delayed growth, school performance, and sports in school

Teacher can make a Difference

Facts about Sickle Cell Disease for Teachers and School Nurses 

Visit #6:  Growth & Development, school issues 

7th 

Visit instructions

Test & anwer key 

Pneumonia/ACS  Visit #7:  Pneumonia/ ACS 

8th 

Visit instructions

Test & answer key 

N/A  N/A 

 9th

Visit instructions

Test & answer key 

N/A  N/A 

 

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