The Alabama Network for Sickle Cell Care, Access, Prevention and Education (ANSCAPE) is a partnership of the 3 community based organizations (CBO), 3 federally qualified health centers (FQHC) and UAB who collaborate to improve access to state-of-the-art primary and tertiary care and establish a medical home for adult and pediatric sickle cell patients in a 23 county area of central Alabama. ANSCAPE was established in 2006 with a grant (one of the original 4 Sickle Cell Disease Treatment Demonstration Projects (SCDTDP) funded by The Human Resources Services Administration (HRSA) and the Maternal and Child Health Bureau (MCH). ANSCAPE partners include:
The UAB Division of Pediatric Hematology and Oncology
The UAB Comprehensive Sickle Cell Center
Community Based Organizations (CBOs):
The Central Alabama SCDAA Chapter
The Greater Montgomery SCDAA Chapter
The West Alabama SCDAA Chapter
ANSCAPE VISION is that individuals with a sickle cell diagnosis:
ANSCAPE Goals Are:
ANSCAPE On-Line Sickle Cell Disease Educational Programs: ANSCAPE offers two on-line educational programs focused on teaching families and health care professionals about 1) sickle cell disease diagnosis and treatment and 2) how sickle cell disease impacts their lives and their practices. These programs are: The Baby Sickle Training and Education Program (Baby STEP®) and The Provider Education Program (PEP®)
Baby STEP®: The Baby Sickle Training and Education Program
Thomas Howard MD, UAB Division of Pediatric Hematology and Oncology, Kristen Osborn CRNP ,UAB School of Nursing, and Heather Carlton CRNP, Children's Health Systems, collaborated with the ANSCAPE Advisory Board to develop and educational program for parents of children born with SCD. This program offers online access to educational DVDs for use of health professionals, sickle cell counselors or family members to teach families about what to expect, how to evaluate the child and when and how to get help. BABY STEP was originally created in 2001 by K. Osborn CRNP and L. Brown CRNP and tested for 10 years in The Children and Youth Sickle Network® (CYSN®) clinics; In 2007-2009 it was re-created and updated for ANSCAPE. Among sickle cell disease educational programs it has several unique features: 1) it is sickle cell disease specific, meaning there are separate educational tracks for HbSS, HbS/β0thal, HbSC, HbS/β+thal diseases; 2) it is available on-line; 3) it was vetted by the HRSA NCEC and the SCDTDPs; and, 4) it comes with pre and post tests to track success through the program.
The Provider Education Program (PEP®)The Provider Education Program (PEP®), offers health care professionals the opportunity to learn about the diagnosis and treatment of any problem physicians and nurses may encounter with sickle cell disease, inpatient and outpatient. It is a series of "Grand Rounds" style DVDS available to health care professionals for viewing online. It was developed in 2009 by Thomas Howard MD. The course faculty includes UAB Division of Pediatric Hematology and Oncology faculty and Johnson Haynes MD, Director USA Comprehensive Sickle Cell Center. Topics covered include: Initial Visit with SCD, Infections and Infection Prevention, The Febrile Sickle Cell Patient, Stroke, Stroke Prevention, Acute Chest Syndrome, Pre-Operative Preparation, Transfusion, Primary Care of the Adult SCD Patient, Pain and Pain Management and others.